PANS and PANDAS resources for patients and families

Join the Community Room: Neuroimmune Membership

The Neuroimmune Community Room is a membership program available for caregivers, patients and community members seeking to understand PANS / PANDAS as well as infectious, post-infectious, and autoimmune encephalitis. Anyone can become a member, however, medical clinicians who qualify can join and access our clinician education opportunities.

Neuroimmune Community Room Members receive access to Q&A with clinicians, quarterly meeting style Q&As, CME presentations, as well as priority registration to upcoming initiatives.

Request PANS/PANDAS information be sent directly to a clinician

(Your personal information will not be disclosed)

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Guidestar, the world’s largest source of information on nonprofit organizations has granted Neuroimmune Foundation their Platinum Seal of Approval the past six years in a row (2019–2024), an honor held by only 0.5% of nonprofits.

Additional Resources

The Journal of Child and Adolescent Psy­cho­pharma­cology

September 2017 Edition

Stanford PANS Clinic and Research Program

The Journal of Child and Adolescent Psy­cho­pharma­cology

February 2015 Edition

RareShare: The Global Platform for Connecting Rare Disease Patients

 

Cover of the book My Story About PANS/PANDAS, with a drawing of a child and their dog.
My Story About PANS/PANDAS is a heartfelt story written for kids who have PANS/PANDAS and their family, friends and educators. Wonderful addition to any classroom! Once a typical boy, Owen’s journey with PANS/PANDAS began after he was exposed to an infection that changed everything. Abruptly faced with severe anxiety, OCD, tics, and rage, Owen finds himself navigating a world full of doctors, medical tests, IVIG, and even weird smoothies. Likening his journey to a climb up a challenging hill, Owen helps the reader understand that sometimes the path is straight and easy, but sometimes you must zig-zag or find another way to the top.