Advocating on behalf of children with PANS PANDA

We are a non-profit organization dedicated to dramatically accelerating physician education of PANS, PANDAS, and encephalitis; significantly improving outcomes for children impacted by these disorders; providing meaningful support to families during their darkest days; and catalyzing research at an unprecedented pace.

Advocating on behalf of children with PANS PANDA

We are a non-profit organization dedicated to dramatically accelerating physician education of PANS, PANDAS, and encephalitis; significantly improving outcomes for children impacted by these disorders; providing meaningful support to families during their darkest days; and catalyzing research at an unprecedented pace.

Extensive Free Resources

Our extensive free resources for providers to include Continuing Medical Education, Clinician Membership, access to top experts in the field through monthly case-based Q&A, and quarterly compilation of relevant research gives providers the tools to confidently diagnose and treat PANS, PANDAS, immune-mediated and inflammatory conditions.

Families are supported through therapist led webinars and Q&As, local support meetings in 40+ locations around the world, and access to video webinars and interviews with top experts.

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What are PANS / PANDAS?

PANS stands for pediatric acute-onset neuropsychiatric syndrome.

PANDAS is the acronym for pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections. PANDAS is a subset of PANS.

Researchers suspect that PANS and PANDAS result from infections or environmental triggers that cause abnormal activation of the immune system, which then attacks neuronal cells.

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Featured News & Information

IVIG for PANS & PANDAS 101

While not all children with PANS and PANDAS need IVIG, the path for those who do can be nerve wracking and expensive. I’m a parent and not a medical...

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Share Your Story

PANS PANDAS in our own words on notebook
A platform for children, teens, and adults to share their personal experiences of living with PANS, PANDAS, or other neuroimmune disorders.

Family Resources

Father Daughter playing - Family Resources for PANS/PANDAS

See more news and access numerous resources available just for families.